Just want to record a typical day of my life.
At 8:10 the doc's office calls to inform me that I cannot have pain meds unless I come in to see her. I tell them I've been waiting almost 3 months for a wheelchair and have been searching for any doc in VT who'll make housecalls to the homebound. There are none in the state. Even the State Ombudsman office, who were very nice and quite thorough in the investigation, didn't find one. She says, basically, tough shit. Come to the office or goodbye.
At 9 I call the med supply in New Hampshire to ask when I'll have a wheelchair. The owner's daughter says they're working on it; maybe next week. This is what I was told 4 weeks ago. I tell her that I must have it to go to the doc within two weeks or I won't even get meds anymore. She says maybe next week. And my calling card has mysteriously cut my long distance minutes to 22 minutes when I had 128 3 days ago and have made no long distance calls.
At 9:10 I call my RN caseworker and get her voicemail. I tell the short form of what's happening, choking up at the end. It's 2:10 and I've had no call back.
At 10 I call the doc's office to make an appt. She's on vacation for 2 1/2 wks; I get an appt for August 20, well after the 2 week red flag. No, I can't get in before then. Hopefully I'll have a wheelchair by then; if not, no more doctor, no more pain meds.
At 10:20 I call ATT to ask what's up with my calling card. After pressing every number known since the Arabic system was created, I get a human who tells me they can't do anything and implies that I'm trying to rip them off.
Between and amongst the above I return emails and work on annikee's bits for Sunday, make the shopping and errand lists for my aide who with God's help will be here around 3, read today's news, write the check for this exorbitant internet service and pray that nothing more will fuck up today. Nonfood shopping will have to wait til next Friday as there's no $ left after the bills and payday is Monday but I'll have no aide to shop til the 7th. So the dirty floors will have to wait til Tuesday, August 11th when the housekeeper comes. And at least I have baking soda and peroxide to brush my teeth with, so I shouldn't complain. 75% of the planet don't have a bed, closet and fridge. I do.
At 12 I call Stevil to confirm our plans for him to come over for spaghetti dinner next Weds. We kvetch about life and what dinosaurs we've become. At least we have each other, we still get the cultural references we make. A young coworker of his never heard of "The Sound of Music".
At 1 I griddle a burger for brunch cuz if I don't finish the rest of the package it'll go sour and I can't waste food. It's already going brown so it's getting there. Turns out fine.
At 1:49 a bill collector calls. I hang up on them.
At 2 :10 I begin writing this blog so there's one last July post.
At 2:45 I call the pharmacy (love them) to check they can deliver my meds after my aide drops the scripts off today. She'll have no time to go back for them. It'll cost me more on top of the co-pays but I'll give em a check and it won't go thru til Monday. They can deliver after 4; ass covered once again.
At 3 my aide gets here! Hooray! We go over the events of this week with the ongoing VNA problems. Great news- the woman who used to be the Scheduler is going back to it on Monday! No more nasty lying person! My aide is terrific; we go over the lists of what's to do and where to go and she's out the door, shopping cart and bags, lists, coupons (15 bucks in food coupons!) and cards, keys and gel cap bottle in hand at 3:15.
Meanwhile I reply to a few more emails and add the last couple links to "a's b's", clear a counterspace for the incoming groceries, combine tomato sauces for dinner and update this.
At 3:45 I have a worry that even though the 1st of the month is tomorrow & a weekend day, the Food Stamp Program may not credit us today but Monday and I won't get food til next Friday. My aide will call if there's a problem, I hope... I do have cans of beans, some hot dogs and boxed mac'n'cheese if there's no incoming food.
At 4:10 the pharmacy delivers, but the doc's office hasn't refilled the anti-inflammatory. I'm guessing that's part of the blackmail to come to the office. They're OTC, so when I have money I'll get them myself. My Tuesday aide can walk that far.
At 4:20 my aide calls from the supermarket (told ya she's terrific)- they're out of a couple things & she wanted to know what to do. So far so good. We'll see what happens at checkout.
At 4:35 my aide called. I have 5 bucks on my FS card. No food for me. But at least there's enough for milk; the rest will have to wait til next Friday. Back to nothing, but I should be used to that.
At 4:45 I email Stevil that Weds night dinner is off. My heart is beating in my ears.
At 5:10 my aide returns. She stopped at the office & they said the state isn't crediting FS til tomorrow. And she didn't get a paycheck.
At 5:20 I'm filling the gelcaps the pharmacy delivered with ground valerian.
It's 5:45. I've surveyed the freezer and fridge contents. I have one egg, so I can make scones tomorrow. I also found a half pound of ground pork, with that & the last bits of the browning burger & the mixed sauce I'll make marzetti tomorrow. That'll hold me a few days. There's still some frozen waffles and Brown & Serve sausages, and Kathleen's son's strawberry syrup, so that'll be breakfast for at least the week. It'll be okay. I've no appetite for dinner tonight.
Just another delightful day in the life. I'll be turning in early tonight. Enough's enough.
A good friend (Barb, I call her SABS- Stupendously Awesome Big Sister) read this blog & has volunteered to shop for me tomorrow! It's hard to say what a relief it is. But that's why I call her SABS. And Stevil offered to lend me funds/food. He has next to nothing himself. Like I said before, ya gotta have friends. :) We live to fight another day.
The Trip Gets Longer and Stranger
4 days ago